Why is Rachel’s Well advocating for Primary Ovarian Insufficiency (POI)?
-Our president is a women with Primary Ovarian Insufficiency and she knows first hand how difficult life can be when dealing with the disease and all of its ramifications. She experienced a delay in diagnosis because her symptoms and her lack of menstrual periods were not taken seriously by her health care providers.
-A second important reason is that a delay in diagnosis of Primary Ovarian Insufficiency increases a woman’s risk at developing serious health problems. Therefore, more awareness and ultimately earlier diagnoses for girls and young women with Primary Ovarian Insufficiency is an important goal that Rachel’s Well strives towards.
-A third reason is that by advocating for an increase in quality medical research, Rachel’s Well can help in the struggle to get better treatments developed and ultimately to find a cure for Primary Ovarian Insufficiency.
Click here to learn more about Primary Ovarian Insufficiency.
Why is Rachel’s Well advocating for the importance of the menstrual cycle?
Rachel’s Well feels strongly that women and their families should know as much as possible about the importance of the menstrual cycle. Through public awareness campaigns, medical research and increased numbers of doctors with the necessary expertise to treat women with Primary Ovarian Insufficiency, Rachel’s Well can make positive impact on the healthcare of women and their families.
Why is Primary Ovarian Insufficiency a very important topic of health for teenage girls and not just older women?
A woman diagnosed with Primary Ovarian Insufficiency has to deal with strong emotions such as grief and can be faced with potentially difficult decisions in her life within short time windows. For a very young girl in her teens, symptoms of Primary Ovarian Insufficiency such as lack of breast development can be especially difficult to deal with. For this reason, girls going through puberty should be educated on the importance of their menstrual cycle and related diseases such as Primary Ovarian Insufficiency.
How can you help?
Please click here to find out more about getting involved.